Joanne, Boisterous Bens mum – Between 15.30 to 19.30 Pm

 

Mother earth starts at 15.30 to 19.30

We welcome Joanne to “Mother Earth” her ten-year-old epileptic son Ben has up to 300 seizures a day.

Joanne’s ten-year-old epileptic son Ben has up to 300 seizures a day. His condition improved after she gave him cannabis oil containing both CBD and THC that her friend brought back from a Canada based medical cannabis clinic.

Joanne asked her doctor at the Alder Hey Children’s Hospital to fill out the government application forms in July 2018 which he did, but the Trust failed to sign it off. Later she asked the neurologist again in December 2018 to prescribe cannabis to Ben, but a new policy in the trust meant that his case was escalated to a panel of different doctors, which rejected her application.

She told The Sunday Telegraph: “Ben was doing really well on it. His seizures reduced to six a day, but it then ran out, and they went up,” she said.

“If a doctor gave our son that medication that is now available to them to prescribe and dosed it correctly, we know it’s going to work for him and stop his seizures.

“Ben was never ill over the period of time he had the oil.” His condition worsened and he was admitted to A&E ten days later.

Ben was then put onto Epidiolex in October 2018 and it quickly failed and by December he was having up to 300 seizures a day.

In a letter discharging him from hospital, staff wrongly told Joanne, they were legally unable to prescribe cannabis oil to Ben, even though it had been legal for almost two months.