FND Awareness (UK) [Functional Neurological Dissorder]
One thing I’ve noticed being on so many Functional Neurological Disorder support pages is just how many people are left struggling after diagnosis.
It feels like once you’re told “it’s FND,” the support suddenly stops.
People are living with paralysis, tremors, seizures, speech problems, pain, falls, mobility issues, exhaustion and cognitive problems — yet so many are left fighting just to be heard.
And honestly, even the name can feel frustrating. They call it “functional,” yet nothing about what many of us are going through feels functional at all. When your legs stop working properly, your speech disappears, your body shakes uncontrollably, or you’re collapsing daily, it hardly feels like functioning.
Why does it feel so ignored within the medical system?
So many patients are passed from one department to another, waiting months or years for help, therapies, investigations or even basic understanding. The symptoms are real, frightening and life-changing, but many still get made to feel dismissed because scans or tests don’t always show clear answers.
I’m not posting this for sympathy. I’m posting it because there are thousands of people living like me this reality every day, and far too many feel abandoned after diagnosis.
The impact this condition has on people’s lives is devastating, and patients deserve more support, more research, and far more understanding than they currently receive.
Does anyone else feel the same?
Pcbradio.com 